CLL Advocates Network

The CLL Advocates Network (CLLAN) is the global network of chronic lymphocytic leukaemia (CLL) patient groups. It was founded in 2014 by representatives from Canada, Czech Republic, France, Ireland, Italy, Portugal, UK and the United States. As a global network, the CLL Advocates Network’s mission is to enhance CLL patient care and improve patients’ outcomes.
The following principles guide CLLAN’s work:
- Act as an international collective representative of CLL patient advocates
- Develop tools to empower advocates to support their local CLL communities
- Share best practices
- Advocate for better care and access
- Aid in the development of CLL specific support in all countries
The CLL Advocates Network hosts “CLL Horizons”, conference designed to build capacity in patient advocates, to educate them and grow their skills on how to work locally with their patient groups, in good governance, in disease-specific topics, and to create an opportunity to leverage the network’s experience for the benefit of all CLL patients worldwide.
The CLL Advocates Network is governed by a Steering Committee:
- Peter Haggert
Steering Committee Member & Chair, Canada - Nick York
Steering Committee Member, Chair Emeritus & Treasurer, United Kingdom - Pierre Aumont
Steering Committee Member & Vice Chair, France - Jana Pelouchova
Steering Committee Member, Czech Republic - Michael Rynne
Steering Committee Member & Communications Officer, Ireland - Felice Bombaci
Steering Committee Member, Italy - Brian Koffman
Steering Committee Member, United States of America - Kathryn Huntley
Steering Committee Member, Australia - Jennifer Wilson
Steering Committee Member, United States of America - Johannes Förner
Steering Committee Member, Germany
The Steering Committee of the CLL Advocates Network is supported by:
- Mirna Tomašević, Communication and Administrative Coordinator mirna@clladvocates.net
- Jan Rynne, Project and Stakeholder Relations
jan@clladvocates.net
For more information, please visit the CLL Advocates Network website.